Frequently asked questions - faq

FAQs

1.

No, there is no cure. Remember, a person with Down syndrome has an extra chromosome. The genes in the extra chromosome slightly alters the way the person develops. That is why, Down syndrome is not an illness or a disease rather it is a condition. Early intervention, high quality health care, good educational opportunities, appropriate nutrition, and many other interventions make a huge difference in the individual’s life.

2.

Early intervention helps managing the condition. Immediately consult an occupational, physical and speech therapist, who will guide you in how to promote your baby’s progress. Talk to other parents near you, they might have more information on affordable programs in your area and on how to start. Also reach out to us for online social interaction and assistance from other parents.

3.

Don’t segregate your child. Don’t give them a different life, rather, let them play, go to school, make friends and discipline them like any other child. Let them face their fears and learn from their mistakes. By doing this you are teaching them to be dependent. Early intervention programs will help them develop motor, language and social skills that will give them better chance to success. Remember, it’s just an extra chromosome.

4.

  1. "They all develop at different paces but they surely reach there in the end. This kids teach us patience. Mine walked at 3. 5 he's now 5yrs" -Ruth, Parent.
  2. "I believe they all achieve this milestone differently. My son started walking at 3.5 years old and used to undergo 3 times a week occupational therapy. He stabilized the steps at 4yrs" -Parent.
  3. "My sister walked at 4yrs. When the time is right, he will walk" -Sibling.
  4. "My son walked at 2 yrs,now 8yrs n learning to talk"-Roselyne, Parent.
  5. "The encouragement I have to u is to be patient and kind to your kid. Mine walked at 2 yrs"- Makori, Parent.
  6. "Patience and therapy is the key..mine walked at 2.7yrs. Patience, prayers and positive mindset is the way to go. They all reach their milestones differently" -Betty, Parent.

5.

Hypothyroidism is common in children with down syndrome. It can be hard to distinguish between DS and hypothyroidism- both have similar presentation: hypotonia, growth failure, developmental delay, dry skin, fatigue, weight gain, constipation. There is no way to prevent it. Recommendation: Thyroid function test every 6months. Levothyroxine is thyroid hormone replacement given in hypothyroidism.

6.

Start early (unless there is an underlying heath condition), do it frequently 3-4times a week in hospitals(either public or private) or you can consider homebased options.

7.

Integrated school is best. Learning disabilities, MR (mild to severe) assessment should be done first before placement.

8.

Consider diet rich in fiber, lots of water and fresh fruits and vegetables. 

Short term: Laxatives,suppositories. DS high incidence of gluen intolerance and cow milk protein ellergy: Avoid wheat products and cow milk if necessary. 

9.

Cabbage blocks thyroid hormone production. Other foods are, broccoli, cauliflower, turnipps.